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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Alla artiklar - Möt RfCF:s nya förbundsstyrelse! - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Alla artiklar - Möt RfCF:s nya förbundsstyrelse! - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Alla artiklar - Möt RfCF:s nya förbundsstyrelse! - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:title>Alla artiklar - Möt RfCF:s nya förbundsstyrelse! - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Var har CF-patienterna tillgång till Kaftrio? Kaftrio i kombination med Kalydeco (eller Trikafta som medicinen också kallas) används idag vid behandling av CF i 34 olika länder: USA, Kanada, Australien, Israel, Tyskland, England, Skottland, Wales, Nordirland, Irland, Frankrike, Belgien, Italien, Spanien, Portugal, Nederländerna, Liechtenstein, Österrike, Luxemburg, Malta, Schweiz, Danmark, Norge, Finland, Island, Polen, Bulgarien, Rumänien, Slovenien, Slovakien, Kroatien, Grekland, Tjeckien och Ryssland. Detta motsvarar sammanlagt nära 99 procent av alla patienter med minst en delta F508-mutation i världen. Anledningen till att de fyra länderna som ingår i Storbritannien räknas var för sig i listan är för att de har separata förfaranden för subventionsgodkännande. Kroatien, Grekland och Tjeckien har s.k. named-patient licensförfarande, dvs. formellt inte full reimbursement, men behandlingen når här ändå de CF-patienter som har behov av Kaftrio. Grafik: Andreas Jarblad, Riksförbundet Cystisk Fibros.</image:caption>
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      <image:title>Alla artiklar - Visst gör det ont när system brister: 600 dagar utan Kaftrio - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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    <image:image>
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      <image:title>Alla artiklar - Visst gör det ont när system brister: 600 dagar utan Kaftrio - Make it stand out</image:title>
      <image:caption>Whatever it is, the way you tell your story online can make all the difference.</image:caption>
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      <image:caption>Acko Ankarberg Johansson och Andreas Jarblad. Foto: RfCF.</image:caption>
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      <image:caption>Tanja Hedberg. Foto: privat.</image:caption>
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      <image:caption>Jesper Magnusson. Foto: privat.</image:caption>
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    <lastmod>2020-03-12</lastmod>
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      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1571251694984-D0RNYTTCGKG7G3TZH7ND/Lennart+Johnzon.JPG</image:loc>
      <image:title>Alla artiklar - Nu uppskattar jag allt i livet</image:title>
      <image:caption>Jag tillsammans med Berit Hübinette, ordförande i Calmare Mopedunion. Foto: privat.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1571251718906-UQZ81U82S1FSW7488Q4B/Lennart+Johnzon+3.png</image:loc>
      <image:title>Alla artiklar - Nu uppskattar jag allt i livet</image:title>
      <image:caption>Lennart Johnzon. Foto: privat.</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/10/22/trikaftausa</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2020-08-26</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1571818626927-JCQXF8HHRFFW97RYY8K2/Trikafta-vertex.jpg</image:loc>
      <image:title>Alla artiklar - FDA godkänner tredje generationens CFTR-modulator på rekordtid</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/10/11/ledare</loc>
    <changefreq>monthly</changefreq>
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    <lastmod>2019-10-16</lastmod>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/10/10/aktuellt-om-organdonation</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2019-10-11</lastmod>
    <image:image>
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      <image:title>Alla artiklar - Aktuellt om organdonation</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570715851904-1CEBEOHBPCM7U24CMZTL/Sk%C3%A4rmavbild+2019-10-10+kl.+15.55.22.png</image:loc>
      <image:title>Alla artiklar - Aktuellt om organdonation</image:title>
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    <image:image>
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      <image:title>Alla artiklar - Aktuellt om organdonation</image:title>
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      <image:title>Alla artiklar - Aktuellt om organdonation</image:title>
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    <image:image>
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      <image:title>Alla artiklar - Aktuellt om organdonation</image:title>
    </image:image>
    <image:image>
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      <image:title>Alla artiklar - Aktuellt om organdonation</image:title>
    </image:image>
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      <image:title>Alla artiklar - Aktuellt om organdonation</image:title>
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  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/10/7/rosenmedaljen</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2019-10-07</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570456026139-K950OSVJFJU2VKPN39RB/Medicinpris-1-14.jpg</image:loc>
      <image:title>Alla artiklar - Rosénmedaljen till CF-forskaren Kris de Boeck</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570455945412-YTYL82WM6HTZ4YKBRDYQ/Medicinpris-1-4.jpg</image:loc>
      <image:title>Alla artiklar - Rosénmedaljen till CF-forskaren Kris de Boeck</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570455985205-WHK8JWYDYU5JOM8SG3P0/Medicinpris-1-6.jpg</image:loc>
      <image:title>Alla artiklar - Rosénmedaljen till CF-forskaren Kris de Boeck</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570456004297-RBZRO8EJ28BH7RJK78ZP/Medicinpris-1-10.jpg</image:loc>
      <image:title>Alla artiklar - Rosénmedaljen till CF-forskaren Kris de Boeck</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570456121712-WGXR9CJ0IYZQ58KYO4AL/Medicinpris-1-41.jpg</image:loc>
      <image:title>Alla artiklar - Rosénmedaljen till CF-forskaren Kris de Boeck</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570456045774-WKVSFN3RV0HJS4KY5RHU/Medicinpris-slk.jpg</image:loc>
      <image:title>Alla artiklar - Rosénmedaljen till CF-forskaren Kris de Boeck</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570456144476-4O3164HXOTS0ZKYIRMNG/Medicinpris-1-42.jpg</image:loc>
      <image:title>Alla artiklar - Rosénmedaljen till CF-forskaren Kris de Boeck</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570456150511-AUY20GFV4Y9A4PWAZIJR/Medicinpris-1-45.jpg</image:loc>
      <image:title>Alla artiklar - Rosénmedaljen till CF-forskaren Kris de Boeck</image:title>
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  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/9/20/internationell-kongress-om-att-bli-ldre-med-cf</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2019-10-03</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570014792918-2XY0UK8YUA2UQ58QUTNJ/Jag+p%C3%A5+taket+till+katedralen+i+Milano.jpg</image:loc>
      <image:title>Alla artiklar - Internationell kongress om att bli äldre med CF</image:title>
      <image:caption>Jag på taket på katedralen i Milano.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1569922507229-M4YDIFGNPFFB70QYDQXO/Jag%2Btillsammans%2Bmed%2BJessica%2BMaetz%2Bfr%25C3%25A5n%2BFrankrike%2Bsom%2Bh%25C3%25B6ll%2Bf%25C3%25B6redrag%2Bom%2Batt%2Bleva%2Bsom%2B%25C3%25A4ldre%2Bmed%2BCF.jpg</image:loc>
      <image:title>Alla artiklar - Internationell kongress om att bli äldre med CF</image:title>
      <image:caption>Jag tillsammans med Jessica Maetz från Frankrike som höll föredrag om att leva som äldre med CF.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570015109934-8GVIPCVE2YTE8CCF0LX8/Milano+14.jpg</image:loc>
      <image:title>Alla artiklar - Internationell kongress om att bli äldre med CF</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570015108441-GXHJSTQM3XTNQ1KAIHA9/P%C3%A5+stora+torget+framf%C3%B6r+katedralen+i+Milano+Dr+Mahasin%2C+Kristina%2C+Dr+Isabelle.jpg</image:loc>
      <image:title>Alla artiklar - Internationell kongress om att bli äldre med CF</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570015090136-DO3UN1WQ3EMRCGOCL70I/Milano+7.jpg</image:loc>
      <image:title>Alla artiklar - Internationell kongress om att bli äldre med CF</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1570015077563-2BJQID3WRYRG2G58DGNS/Katedralen+i+Milano.jpg</image:loc>
      <image:title>Alla artiklar - Internationell kongress om att bli äldre med CF</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/9/26/evawestman</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2020-03-12</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1569512266923-E9EFJEBCXOD3A4HBDTT8/Eva+Westman+och+Toffe+2.jpg</image:loc>
      <image:title>Alla artiklar - Att leva länge med cystisk fibros</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1569512212582-7JZV52QNYJY49C8EGBYV/Eva+Westman+och+Toffe.JPG</image:loc>
      <image:title>Alla artiklar - Att leva länge med cystisk fibros</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1569512321563-LR6QSBOGWP6GEHA4VN3J/Eva+Westman+och+Toffe+3.jpg</image:loc>
      <image:title>Alla artiklar - Att leva länge med cystisk fibros</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/8/29/2xgewwtmaci9t241309y769zx0hd2i</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2020-08-26</lastmod>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/11/25/frbttrad-information-om-vaccinationer</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2019-11-25</lastmod>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/6/30/50-r-av-fantastisk-utveckling</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2019-11-02</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561856439898-ICGVCF5KAKVPQVURZU0P/Sk%C3%A4rmavbild+2019-06-30+kl.+02.55.34.png</image:loc>
      <image:title>Alla artiklar - 50 år av fantastisk utveckling</image:title>
      <image:caption>Figur 1. Ålder på kända patienter under 60-talet i Sverige. Medianåldern (den ålder då 50 % av patienterna är döda) är utmärkt med pilar. Den röda linjen markerar 20 års ålder I dag dominerar de vuxna patienterna.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561856363271-4GC1UTAXV9ZPO0CAYZI2/Sk%C3%A4rmavbild+2019-06-30+kl.+02.58.37.png</image:loc>
      <image:title>Alla artiklar - 50 år av fantastisk utveckling</image:title>
      <image:caption>Figur 3. Förbättringen av centraliserad vård, som infördes i Göteborg på 1990-talet illustreras här för vikt, längd och kroppsproportioner, men gällde även lungfunktionen. Bilden är gjord av Dr. Anders Lindblad.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561916817588-1VF972D65NKEL2GCWJXX/Sk%C3%A4rmavbild+2019-06-30+kl.+19.46.42.png</image:loc>
      <image:title>Alla artiklar - 50 år av fantastisk utveckling</image:title>
      <image:caption>Figur 7. Procent patienter med CF-relaterad diabetes, benskörhet resp depression i USA och Sverige 2007.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561857442575-0GWXY7NO4LED4TYA0YAP/figur2ab.jpg</image:loc>
      <image:title>Alla artiklar - 50 år av fantastisk utveckling</image:title>
      <image:caption>Figur 2. Till vänster: bankning av patient inför, och som en del av, sjukgymnastiken på 60-70-talet. Till höger: modern behandling med studsmatta under intravenös behandling på grund av ökat slem (90-tal).</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561915779203-YBJTLAUAADIQQ8FX33Z2/Sk%C3%A4rmavbild+2019-06-30+kl.+19.29.05.png</image:loc>
      <image:title>Alla artiklar - 50 år av fantastisk utveckling</image:title>
      <image:caption>Figur 5. Hembehandling med intravenös antibiotika som patienten blandade själv. Här ser vi de mer primitiva förhållanden som rådde när vi startade och de fina pumpar som används idag och kan levereras färdiga från apotek.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561916694970-5WWDQH4Z8QGV6FMZZAL4/Sk%C3%A4rmavbild+2019-06-30+kl.+19.43.51.png</image:loc>
      <image:title>Alla artiklar - 50 år av fantastisk utveckling</image:title>
      <image:caption>Figur 6. Medianöverlevnad i Europa under 90-talet. Sverige och Danmark har slagits ihop pga att antalet patienter (kurvorna i botten på bild) var lågt i jämförelse med övriga europeiska länder. Vi hade alltså vid denna tid en medianöverlevnad högre än vad som allmänt redovisas idag (mer än 25 år senare), även om osäkerhet måste påpekas pga det låga patientantalet. Källa: Europeiska CF registret, 1995.</image:caption>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561916399979-ZV5X60TH2KJAEDHV9FTF/Sk%C3%A4rmavbild+2019-06-30+kl.+19.37.37.png</image:loc>
      <image:title>Alla artiklar - 50 år av fantastisk utveckling</image:title>
      <image:caption>Figur 4. Jämförelse mellan lungfunktionen (uttryckt som FEV1, procent av förväntat värde) för olika åldersgrupper av CF patienter i USA och Sverige. Notera särskilt den stora skillnaden hos de äldre patienterna. Bilden erhållen av Dr. Anders Lindblad, 2007. *Referenspopulation: Wang and Hankinson.</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/7/5/rfcf-p-premiren-fr-five-feet-apart</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2019-07-09</lastmod>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/6/30/reserapport-frn-ecfs-i-liverpool</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2019-06-30</lastmod>
    <image:image>
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      <image:title>Alla artiklar - Reserapport från ECFS i Liverpool</image:title>
      <image:caption>Vy från Liverpool. Foto: Conor Samuel.</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/6/27/elizabeths-berttelse</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2020-03-12</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561650786487-34YA3TM61FRV9HOWIRZR/Elizabeth+Paues+2.jpg</image:loc>
      <image:title>Alla artiklar - Min PCD efter 70 år</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561666111354-F927VWZ0YDFTX6PTJNP7/Elizabeth+Paues.jpg</image:loc>
      <image:title>Alla artiklar - Min PCD efter 70 år</image:title>
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  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/6/27/petraholmberg</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2020-03-12</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561649943729-G0GLJQRJZY9XCVEMA33J/Petra+Holmberg+1.jpeg</image:loc>
      <image:title>Alla artiklar - 42 år med cystisk fibros</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561649822955-FHPX6AQ5G4F9IF1IAMLL/Petra+Holmberg+4.jpeg</image:loc>
      <image:title>Alla artiklar - 42 år med cystisk fibros</image:title>
    </image:image>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561649884675-9UJ6BQ8D8PR2ELWKIL9Q/Petra+Holmberg+5.jpeg</image:loc>
      <image:title>Alla artiklar - 42 år med cystisk fibros</image:title>
    </image:image>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/6/27/vad-r-en-patientriksdag</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2019-11-11</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1561634522740-ESXW1EZB74X0HRIU86IU/Socialminister+Lena+Hallengren+och+G%C3%B6ran+H%C3%A4gglund.jpg</image:loc>
      <image:title>Alla artiklar - Patienten i centrum på ny Patientriksdag</image:title>
      <image:caption>Lena Hallengren (S) och Göran Hägglund (KD)</image:caption>
    </image:image>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/3/10/ny-podcast-om-att-leva-med-cf-och-pcd</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2020-03-13</lastmod>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/4/28/ledare</loc>
    <changefreq>monthly</changefreq>
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    <lastmod>2019-10-02</lastmod>
  </url>
  <url>
    <loc>https://cfbladet.squarespace.com/alla/2019/4/27/en-fjrils-kamp-uf</loc>
    <changefreq>monthly</changefreq>
    <priority>0.5</priority>
    <lastmod>2019-04-30</lastmod>
    <image:image>
      <image:loc>https://images.squarespace-cdn.com/content/v1/5bc636609b8fe864b1889c10/1556458685159-2WN7SR2O7BLUR0U015OQ/emporia.jpg</image:loc>
      <image:title>Alla artiklar - En fjärils kamp</image:title>
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      <image:caption>I mitten av augusti var det dags att anmäla sig til CF-spelen, och till RfCFs stora glädje var det många som ville komma, både under dagen och under kvällens jubileumsmiddag. Bild: RfCF.</image:caption>
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